Tom had a good day today. When the surgeon stopped by this morning, we talked about what the doc called Tom's "short neck". I told him "short" would be a generous description. :) Tom had some good awake time (during which we "danced" to his Baby Einstein tunes and reintroduced his pacifier - which he LOVES) and some good sleep time. He seems to be recovering well and adjusting to his new contraption. It's just so nice to see him in a good mood. He's even been making eyes and smiling at some of the nurses...he prefers blondes.
We're weaning him gradually on the ventillator. He was at 80% oxygen last night and is down to 60% tonight. We're watching his blood gases closely and using them as a guide to make adjustments on the ventillator. He's still holding steady at 30 breaths per minute, but hopefully yet this week we can take that down a couple notches too.
The docs want to get a solid 48 hours of recovery in before we try to hold Tommy - so maybe as early as late tomorrow afternoon, I'll be able to hold him. We'll see how his day goes tomorrow.
All of your comments are so caring and thoughtful. Thanks for all your support. We'll be in touch again soon.
Lots of love from Indy,
Kristin & Tommy
P.S. I talked to Tim last night after he got home to Henry, Joe & Sam. It had been 2 weeks since he last saw them. Tim's reaction: "They're huge!" :) They're so huge that the pediatrician has approved for us to try a 6-hour stretch at night between feedings. We'll see how it goes...Good luck tonight, Tim and Katie!!
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Great update about Tommy Kris! And, great news about Sam, Henry and Joe back home with the feedings at night! Your 4 boys are just precious! xoxo Great chatting with you today too, sorry it got cut short, but so great to hear your voice! Love and miss you!
ReplyDeleteYou have all been in our thoughts and prayers the past couple weeks. Great news for your progress down in Indy as well as the Coleman boys that are holding down the home front.
ReplyDeleteWe hold strong to the thoughts of you all being home together soon.
Tomorrow is a new day, count your blessings and get a good night's sleep.
Our best, The Marsh Family
What a relief that all is progressing so well. And the thought of being able to hold and cuddle with him again must make your heart burst.
ReplyDeleteWe'll continue to keep everyone in our prayers. Love to you all. Dorothy & Roland
Such wonderful news. We'll continue to keep all of you in our prayers. Thank you for keeping us informed this way. It means a lot to us family so far away. Love to you all
ReplyDeleteHoney and Ken
So glad to hear Tommy had a good day! 6 hour stretches at night?! Woo-Hooo!!!!!
ReplyDeleteIt is such a relief that Tommy is through his trach procedure and had a good day. Now he can recover and get stronger. Just think, down the road he will be playing with his brothers and making you crazy and this will just be a memory. We thank God every day for his progress and the good health of his brothers at home. Life is good and you are so blessed. I agree with Nikki! Six hours between feedings at night --- now you're talkin'. I will say though, the sleepy little smiles in the middle of the night are pretty precious!
ReplyDeleteLove you, Mom and Dad
Glad to hear how well things are progressing. You are in our thoughts, surrounding you with care. never give up...
ReplyDeleteYayy! Love the good news - keep it coming!
ReplyDeleteBrooksie
Tommy has such a strong will and a phenominal group of loving and caring family and friends that support that strength. He is so blessed and we are blessed to have him.
ReplyDeleteHang in there and take care of yourselves too. Always drive with care.
Love, Craig a & Molly
The Agostino's were glad to hear that Tommy is doing well. We think of you all often and will continue to pray for you. We will be coming to Indy for a follow up appt on the 28th for Sophia. If you need me to bring anything down to Indy or back home to Granger- Please let us know. The Agostino's
ReplyDeleteSo glad to hear Tommy (and the rest of the Coleman boys) are doing well. FYI - Amanda Stone Willis' baby boy just had his trach removed (he is now 2 years old) and is doing WONDERFUL. Amanda just e-mailed and said he is thriving! Doing everything a 2 year old boy should be doing. Wanted to pass on that optimistic news to you all!!!
ReplyDeleteKP
What wonderful news to hear about Tommy. He's a strong little guy. I'm thinking about you, Kristin, with your pad & pen, asking questions & giving valuable input. Who would have thought that your attention to detail would be put to use for such an important task? Tommy couldn't ask for better parents to give him the care & love he needs. You're his advocates & he's blessed that you're there for him. Stay strong. Love, Lori O'Hern
ReplyDeleteWow. You guys have certainly been through a lot. Sounds like your little guy is a fighter! Stay strong. Praying for you guys and your little ones!
ReplyDelete